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Meet Sarah

“When so much happens, it changes you. I  became suddenly someone who was sick and needed to be looked after, whose whole identity was shaken and I think that's quite complex.” 

Dealing with an altered body image and changes in your sexuality can be particularly difficult for younger women. Some changes will be treatment induced and possibly short-term, but some women will have long-term effects. Sexuality is not just about intercourse or masturbation, it’s about how you feel about yourself, how you interact in relationships and your physical responses in sexual situations. It’s an important aspect of body image, and can be affected by your diagnosis and treatment.

The feelings you experience may be unexpected. They can leave you feeling unsure of where to seek help and possibly embarrassed to talk about it. You're not alone; many women in your situation experience similar feelings and help is available.

Changes you may experience

Loss of self-esteem and confidence

Surgery can cause a number of different physical changes including scars, hormonal changes and sometimes the need of a stoma. Chemotherapy can cause hair loss, fatigue, tiredness and nausea or vomiting. All these factors can have an impact on how you feel about yourself and may have an impact on your relationships with family, friends and intimate partners and you may find that you question who you are now.

Lower sex drive

The loss of testosterone (a hormone produced by men and women) after a surgical menopause may affect your sex drive. You can talk to your GP about hormone replacement therapy (HRT) for this. You or your partner may also experience low desire due to the range of emotions you are both dealing with, in order to come to terms with your diagnosis. You may find sex no longer gives you pleasure, or is painful, and this may affect your sex drive.

Vaginal dryness and painful sex

After a surgical menopause, the changes in your oestrogen levels cause changes to your vagina and the tissues surrounding it. Your vagina may not be as moist as it previously was and lubrication can be a problem. This can make sex painful and cause vaginal itching and dryness. This is very common but easy to treat. Not being sufficiently aroused can also lead to painful sex and vice versa; painful sex can lead to loss of arousal.

It’s normal to go off sex at times. Knowing why things may be different might help you to understand your personal experiences and highlight if you are having difficulties you’d like help with.

What can I do?

Coming to terms with the new you will take time. For some women it takes weeks and for others months or even longer. Give yourself time to adjust to your new normal.

  • Younger women's guide to ovarian cancerTalk to your medical team about what body changes to expect so that you can prepare yourself.
  • Be prepared for relatives and friends to ask questions about your treatment, and for questions or comments about your appearance. Having thought about how you will respond will make it easier. If you prefer not to talk about it, let people know.
  • Healthy lifestyle changes such as exercise, good nutrition, meditation and complementary therapies such as aromatherapy, reflexology, acupuncture or massage can help you to feel better and manage stress.
  • Be open and honest with yourself and your partner. This will help you feel more relaxed and more able to resolve any problems. Ask your partner what they are concerned about too. Talking to each other can deepen your relationship and have a positive effect on intimacy. For instance you may decide to avoid sex for a while but concentrate on kissing and cuddling, or you may try longer foreplay and different positions.
  • Your Clinical Nurse Specialist (CNS) can advise you or refer you to a sexual health specialist. Don’t be shy about talking to a professional about it; they will want to help you with this aspect of your recovery.
  • Take your time. Painful sex can prevent some women from experiencing an orgasm. It may be that sex is only painful when first having intercourse following surgery and it will settle as your body recovers.
  • Lubricants can improve sensation and moistness. Non hormonal vaginal moisturisers are available to relieve symptoms and vaginally applied oestrogen may be offered as a long-term treatment. It’s worth exploring this with your CNS.
  • Be kind and pamper yourself. Looking after yourself can help build your self-image back up.

Find out more

For younger women

General information

This content is primarily taken from A younger woman's guide to ovarian cancer

Younger woman's guide cover

Our joint guide produced with Ovacome, Ovarian Cancer Action and The Eve Appeal, provides crucial information, advice and signposting to help younger women through the emotional, physical and psychological impact of a cancer diagnosis.   

The information on this page is approved by the Information Standard scheme to ensure that it provides accurate and high-quality information.

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Last reviewed: June 2017
Next review: May 2020