The All Party Parliamentary Group on Ovarian Cancer
Following the launch of our Six Simple Steps campaign in Parliament in June 2010, hosted by Sharon Hodgson MP, enough support was received from MPs and Lords for Sharon to set up the All Party Parliamentary Group on Ovarian Cancer. There are currently 59 members of the group, the purpose of which is defined as follows:
To provide a forum for MPs and Peers to discuss ovarian cancer related issues; to raise areas of concern with government or other policy makers; to raise the profile of ovarian cancer within Parliament and seek opportunities to help improve survival and quality of life for women.
Officers and Members of the Group
(as at 19 November 2013)
|Title||First Name||Last Name||Party||Constituency|
|Lord||Karan Faridoon||Bilimoria||Cross Bench|
|Mr||Russell||Brown||Labour||Dumfries and Galloway|
|Ms||Katy||Clark||Labour||North Ayrshire and Arran|
|Lord||Timothy||Clement Jones||Liberal Democrat|
|Mr||Nick||De Bois||Conservative||Enfield North|
|Mr||Tim||Farron||Liberal Democrat||Westmorland and Lonsdale|
|Mr||Andrew||Gwynne||Labour||Denton and Reddish|
|Mr||Mike||Hancock||Liberal Democrat||Portsmouth South|
|Mrs||Sharon||Hodgson||Labour||Washington & Sunderland|
|Baroness||Elspeth||(Morton) Howe||Cross Bench|
|Lord||Nigel||Jones of Cheltenham||Liberal Democrat|
|Ms||Barbara||Keeley||Labour||Worsley and Eccles South|
|Ms||Mary||Macleod||Conservative||Brentford and Isleworth|
|Mr||Khalid||Mahmood||Labour||Birmingham, Perry Barr|
|Mr||Steve||McCabe||Labour||Birmingham, Selly Oak|
|Mr||Michael||McCann||Labour||East Kilbride, Srathaven and Lesmahagow|
|Mrs||Caroline||Nokes||Conservative||Romsey and Southampton North|
|Mr||Rory||Stewart||Conservative||Penrith and the Border|
- 28th January 2014. This meeting will be held jointly with the All Party Parliamentary Group on breast cancer focusing on the issues around familial breast and ovarian cancer. If you are interested in attending please contact Mike Feakes in advance to reserve a place.
- 30th October 2013. The group heard about the evaluation of the Be Clear on Cancer Pilots for ovarian cancer, and the priorities of the new National Cancer Director, Sean Duffy. The group also discussed what action could be taken to help women in the devolved nations gain access to Avastin, the first drug to extend survival in women with advanced ovarian cancer, in a generation.
- 5th June 2013: The group discussed the drug Avastin, and the availability of it around the UK. Speakers included Dr Tim Perren, Consultant Oncologist who led the UK trials for Avastin, Dr Julian Cole from Roche Ltd who manufacture the drug, Lynn Hill who received access to Avastin through the Cancer Drugs Fund, Annie Mulholland from Wales recounting variability in access, Dr Manesh Gupta on protracted negotiations for access in the North West, Jenny Bogle who was not eligible for NHS funding, and Sarah Osborne from Cancer Research UK. Follow up actions have included correspondence with the APPG on Cancer, Lord Howe, and written questions to the Secretary of State for Health (link to Hansard)
- 5th February 2013: The group discussed the future of the Be Clear on Cancer Pilots, and Medical Innovation. Guest speakers included Public Health Minister Anna Soubry MP, and Lord Saatchi. Actions have included contact with Domain 1 Director for Reducing Mortality (NHS Commissioning Board) and Chief Executive of Public Health England
- 30 October 2012: The group discussed ovarian cancer screening, and the forthcoming Be Clear on Cancer pilots for ovarian cancer. Speakers included Professor Usha Menon, Head of the Gynaecological Cancer Research Centre, University College London, Elizabeth Garret Anderson Institute of Women's Health, and Jennifer Benjamin, Early Diagnosis Lead, Cancer Policy Team, DH. Actions included inviting new Minister to attend next meeting
- 11 July 2012: Annual General Meeting.
- 10 May 2012: The group discussed access to drugs. The speakers were Professor Jonathan Ledermann, Professor of Medical Oncology in University College London's Cancer Institute, and Sarah Woolnough, Director of Policy at Cancer Research UK. The group raised concerns over the supply of the drug Caelyx for women with advanced ovarian cancer and have written to the European Medicines Agency.
- 7 February 2012: The group discussed the challenges and opportunities in ovarian cancer research. Speakers were Mr Andy Nordin, Surgeon and Chair of the NCIN Gynaecological Clinical Reference Group and advisor to NCAT/DH, and Professor Iain McNeish, Oncologist at Barts and the London, and Chair of the Ovarian Subgroup of the NCRI Gynae Cancer Clinical Studies Group. Actions from the meeting included writing to Chief Executive of Astra Zeneca, and to the Director of NHS Screening Programmes.
Target Ovarian Cancer provides secretariat duties for the group. Please note these meetings are not open to the general public. If, however, you are a woman who has ovarian cancer and would be interested in being invited to observe one of the meetings, or if you have general queries about the group and its work, please contact Frances Reid, Director of Public Affairs at Target Ovarian Cancer by clicking on the link or calling 020 7923 5470.
Westminster Hall Debate
APPG member Stuart Andrew MP secured a Westminster Hall debate on ovarian cancer on Wednesday 12th October 2011 between 0930 and 1100. 14 MPs spoke about the urgent need for action on improving awareness. For more details including a transcript of the debate click here. This resulted in a meeting between a delegation of APPG members and the Care Services Minister Paul Burstow MP, held on 29th November 2011.