Is it easier to get travel insurance when treatment is complete and I’m in remission? I heard it would be very expensive to get cover for America but ok for Europe. Is this true? If I decide to go to Europe can I just go with my European Health Insurance Card and possibly buy a Swiss Assist card?
My CA125 levels have recently risen slightly above normal and my GP has booked a scan (having had surgery and chemo for ovarian cancer in the past). I'm going to Canada in August 2013 with my daughters for three weeks. I have asked for a quote to cover all medical conditions, including pre-existing, and it was nearly £3000 (as much as the actual holiday!). I simply can't afford this.
My parents used to go abroad on holiday before my mum was diagnosed in 2008. Their reason for not going away now is because it’s difficult and expensive to get insurance. Are there any companies who offer insurance at a reasonable price for people who have been diagnosed?
I have terminal ovarian cancer with a spread to the omentum. I’m not currently having any treatment, or taking medication. My scans are clear at the moment, and have been ok for the last two years. I would like to go to the USA, or, if that is too expensive, to one of the Canary Islands. Is there any insurance companies that can offer reasonable quotes or should I just get insurance without...
I’m having chemotherapy and am horrified by the amount of hair falling out. I don’t know what to do about it. Some people think I should shave it off but I’m not sure how I feel about looking in the mirror at GI Jane. What are my options?
How can I make my very sparse eyebrows look full and normal again? Since my hair has grown back, my eyebrows seem to be very sparse. Unfortunately I am rubbish with an eyebrow pencil, I look like a mad goth!
The treatment I’m having has caused me to put on weight. I find this hard to deal with, avoid mirrors and no longer know what suits me. My face looks chubbier and I’ve gone up two dress sizes. I don’t want to hide away in black tent dresses. Any tips?
My skin is no longer fresh and dewy since my treatment. I’ve got acne and it looks sallow. How can I improve the appearance of it? What type of products will help restore a fresh-faced glow?
Since chemo, I don’t think I look right. I can’t put my finger on it but I’ve changed. I just don’t feel like the same person. Trouble is I’m broke and the family budget is stretched to breaking point. Do you have any bright ideas about alternative ways of a DIY make over, without spending too much?
I look after my elderly mother but I am getting to the point of not being fit enough to do it myself. What help can I get? I can’t afford private nursing.
I’ve just been diagnosed with ovarian cancer. I need to get my finances in order but have no idea where to begin. What’s your advice?
Are there any types of exercise that are particularly good for women both immediately post-op and later? And any that avoid the risk of causing or exacerbating lymphoedema?
I am 75 and have been cancer-free for five years. I know it’s important to stay active, but at my age what can I be doing? Does my history of illness limit what I can do? I feel too old to become a gym bunny, and all they seem to do is scary looking aerobics classes.
Before I had a hysterectomy and chemotherapy, I was walking regularly and doing body pump to tone up muscle. Some articles I have read on the internet say only to do light exercise but I want to know if I can increase to moderate and strenuous things like body pump, weights or spin classes?
I have been diagnosed terminally-ill with stage 4 ovarian cancer. I have critical-illness insurance but so far the insurers have refused to pay out. They insisted on waiting for the result of my treatment. My cancer came back after only a few months and I am now participating in a medical trial. I plan to contact the insurers again. Can you offer any advice?
My libido is low since surgery, virtually non-existent in fact. I have heard about testosterone patches and implants; can you tell me a bit more about them?
I completed my degree last summer, around the same time that I was diagnosed with ovarian cancer. Having finished treatment a while ago, I now feel ready to apply for jobs. Should I declare my cancer on my application form or wait until the interview? Do I have to tell them at all? What are the benefits and drawbacks?
I have a rare type of ovarian cancer. I have neuropathic pains and have been referred to pain team. I am still managing to work but it is impacting on other activities like housework and sport. When I get tired, I get more pain. What will happen on my first visit to pain team? What kind of tests can they do to show where the pain is coming from? What can be done to treat this kind of pain?
I have a two-year-old daughter and my husband and I have always wanted two children. I’ve just been diagnosed with ovarian cancer and need to have a full hysterectomy. We’re devastated that we won’t be able to have more children and are struggling to come to terms with it. How we can deal with this? Are there any medical options? Would my cancer diagnosis stop us adopting or affect our chances...
What does the future hold now I’ve had a recurrence? Will the tumours keep reappearing? If so, is there any information or statistics as to how long before they do? I feel fine at the moment but will recurrent tumours weaken my body and make me feel ill?
My cancer recurred after about two years, but I’ve been clear since 2009. How do I know I'm alright now when the doctors tell me I am? My CA125 increased but is well within normal limits, and a CT scan showed nothing unusual. How long do you have to wait to say you are clear?
I have advanced disease and am considering the possibilities for treatment. I can either have chemotherapy (probably carboplatin on its own) to try and control it. Or not have chemotherapy and get seriously ill as the cancer spreads and attacks other organs. How can I make the right decision? Is it better to let nature take its course and opt for palliative care?
Is there any database in the UK for patients with any kind of cancers, and how well they’ve done on different treatments?
How long would you say chemotherapy takes before you get it out of your system and your organs to go back to normal?
What causes this cancer? I don't have any measure of oestrogen in my body.
Can you suggest a more effective treatment of sore gums following chemotherapy? I have just completed a second cycle of chemotherapy - carboplatin, gemcitabine and Avastin. I am having trouble with sore gums which are being treated with a mouth wash (Difflam).
What tests should I expect my doctor/gynaecologist to perform in order to detect any recurrence during the 5 year follow up and beyond, after an initial diagnosis for stage 1a ovarian cancer treated by surgery alone?
The cancer is on the bowel and I've been advised it is in difficult location to treat including the front of the bowel. The hospital advised to follow a low residue diet but I sometimes still experience pain especially when the stool is moving through the bowel. I have had mixed advice about whether to include fibre in the diet. Can you give me any advice on diet so that I’m getting nutrients...
I was first diagnosed in Feb 2007. I’ve had chemotherapy and a hysterectomy. I am now on my sixth recurrence during that time (2007/2009/2011/2013/2014 & 2015.) I am currently on Taxol weekly. How is it I’m responding so well?
I'm aware that NICE advises single agent carboplatin whilst the Scottish equivalent also includes Taxol. Some women are advised to have both in England as well though in other centres just one. Is this a cancer centre preference or is it dependent on subtype, grade and type of 1c? It can be bewildering for women given an option or unclear basis for the decision. What issues are considered?
What is the recommended follow up for a borderline tumour (stage 1c)? Is CA125 monitoring necessary after surgery if treatment included a total hysterectomy and removal of both ovaries? Due to completion surgery, I understand a chance of recurrence...
What treatment options are available for third line treatment for low grade ovarian cancer? I have low grade disease and so far I had single agent Carboplatin (2011) for first line and Carboplatin and Gemcitabine with Avastin for second line (2014). During first line my...
Why does calcification (the build up of calcium salts in body tissue) occur and what does it mean? A friend and I both have low grade disease and we have a lot of calcification but we don't understand the significance of this.
Sexual recovery is very important. How do we get support from specialists?
I was asked if I wanted to go on a cannabis trial. What do you think of cannabis trials?
What are your views on proton treatment for ovarian cancer?
What are the chances of ovarian cancer spreading to other areas?
A lot of new developments in treatment, eg PARPs and genetic testing, refer to all non-mucinous ovarian cancers, allowing for some mucinous tumours which do not originate in the ovary. Could the panel explain why this type is excluded and what the implications are for the future understanding and treatment of this type of ovarian cancer?
It feels the minute you’re discharged from hospital you’re easily forgotten by local GPs. Continuity of oncology care at my local GP is patchy to say the least. Why is this?
I would like to know about any new developments for those of us who do not have the genetic form of this disease. Is immunology an option?
I am very interested in learning about any new developments for treatment or advances in understanding why ovarian cancer often recurs.
I am on chemo (carboplatin and paclitaxel) for a recurrence of ovarian cancer and I am also taking Avastin. I have been experiencing more side effects than before (diarrhoea and joint pain). I will be continuing with Avastin when my chemo ends in about 6 weeks’ time and would like to know if there is evidence or experience out there that the diarrhoea and joint pain will ease when the...
How should someone with a stage 1C diagnosis decide whether to have single platinum based chemo or with the addition of Taxol when given the option given the lack of clearer research or data?
My Mum in law was diagnosed last week with stage 3 ovarian cancer. She has now seen her oncologist and has been offered a choice of two treatments. Either: a) carboplatin alone or b) carboplatin and paclitaxel combined.
If she opts for the carboplatin on its own will the treatment be less effective than the combined option? If option b) is most likely to have the desired outcome, why...
Last week I was told I have ascites (abdominal fluid). I am not being operated on or receiving any more chemotherapy so it's a matter of living with it. My consultant doesn't want to drain it so I wondered if anyone had any tips on managing it, especially on diet, what to eat that might help or what to avoid.
Two and a half years ago I was diagnosed with ovarian clear cell carcinoma Stage 1a.This was a very early diagnosis and just in one ovary. I had surgery to remove my ovaries. After this I opted for three-monthly monitoring instead of hysterectomy or chemotherapy. Since then my CA125 blood levels have been normal and the monitoring has shown all is normal.
Am I right in understanding...
Last September I was diagnosed with stage 1C 2 Grade 2 edenometriode adenocarcinoma of the ovary and in October Grade 1 1A endometrial adenocarcinoma. I was supposed to have had six months of chemotherapy but only had five months, I was poorly so they decided not to give me my last one. I don't understand the grades very well or the stages. Will my cancer come back at all?
Is fatigue a symptom of ovarian cancer, or of a recurrence?
Some women say their CA125s weren’t particularly raised prior to diagnosis. Could they be better followed up with CT PET scans, HE4 or the use of other algorithms?
I’ve had several continuing sessions of chemotherapy over several years, and want to know how long this can continue, and what’s the consequences of repetitive chemotherapy?
Is there any specific diet /food that you’d advise to avoid or increase intake of?
I’m currently free of cancer and finding it really hard to move on. What support is there for cancer survivors?
I was diagnosed in 2012 and had chemo and surgery. It came back late 2013, and I’ve had more chemo and started Avastin. I have been really well since until about 4/5 weeks ago, when fluid settled around both lungs and my legs are swelling. I have had 4 chest drains and 2 plural adhesions but I still feel rubbish! The cancer itself has not significantly spread but as you can imagine I have...
My wife has 3c ovarian cancer since 2011, she has had de-bulking surgery and four full courses of chemotherapy. The disease has remained stable but the CA125 has increased, although not massively, since an emergency operation delayed her appointment to see her specialist this year.
Firstly, how do I go about finding out if better drugs are available for treating my wife's ovarian...
I carry the BRCA1 gene mutation and 12 years ago had a bilateral mastectomy, oophorectomy and hysterectomy for preventative reasons. I went to my GPs 3 weeks ago with severe back pain and pains in the tops of my legs and groin and he prescribed naproxen and I had an X-ray on my lower back and pelvis last week, after the results of a blood test showed raised ESR levels.
I'm on Everel 50 HRT patches following my removal of my 1c granulosa cell tumour (which ruptured 26 hours prior to removal). I'm concerned about the safety of being on HRT with history of hormonal cancer. Can you advise?
My relative's stage IV epithelial ovarian cancer has recurred just over 12 months after she was treated with radical surgery, followed by chemotherapy with carboplatin, paclitaxel and bevacizumab. She is BRCA2 positive, and her cancer is oestrogen receptor positive. The recurrent tumours are small - less than 1cm and she is asymptomatic. Instead of repeating her chemotherapy straight away,...
I have read a lot about ovarian cancer, but the one area I don't feel gets enough attention is research into the obvious stuff, to either give credibility or to reject a myth.
For example root ginger is said to impact ovarian cancer, but does it? No effort is being made into research on this compared to Avastin or the parp inhibitors, and yet it could prove a cheap and easy remedy!...
I wrote to my MP as part of your postcode lottery campaign back in June. What is the impact of me doing this? Do you collect data about women’s experiences of ovarian cancer to share with them?
My mum just had ovaries and uterus removed as her periods were heavy and painful. She received her tests result today. It says bilateral papillary serous carcinoma. Tumours in both ovaries. Capsules intact. All margins are free of tumour. Does she have cancer?
My mum was diagnosed with a recurrence of ovarian cancer three weeks ago. She finished her initial chemo two years ago. Her oncologist has prescribed six cycles of carboplatin followed up by Tamoxifen. Do you have any experience of this combination? And why might she only have been prescribed the single chemo drug rather than have it combined with Taxol (which she had in first line treatment...
I am post menopause and I have just started getting period type pains. I had a transvaginal scan and was diagnosed with three very small (one to two centimeters) fibroids. They weren't able to view my ovaries due to too much 'gas' and I am now worried because I have read fibroids don't happen post menopause and whether there could be something more sinister going on with my ovaries.
My wife has just finished chemo for relapsed ovarian cancer and we are trying to find information on reducing the risk of further relapses. We have read reports that turmeric works as an anti-cancer agent and wondered if you had heard anything about this?
Why do some women recur earlier than others? I know four people that finished Avastin last autumn after about two years and three out of the four have recurrences. The other one is myself and my ovarian cancer has remained in tummy area since diagnosis in 2006. Should I be worried about recurrence?
Why is ultrasound used as the scan of choice to diagnose ovarian cancer as opposed to other types of scan such as a MRI or CT scan?
Is there any guidance on recovery from symptoms such as ongoing fatigue? Is this still normal two years on from surgery and chemo?
What is the best way to deal with muscle pains caused by Avastin?
What is the BOCS study, the Breast and Ovarian Cancer Susceptibility Study?
What research is being carried out for low-grade serous ovarian cancer?
What research is being carried out for clear-cell ovarian cancer?
How do I know what clinical trials I’m eligible for and what is available to me at other cancer treatment centres?
What causes cells to replicate and form tumours?
Can the panel provide any advice on how I can best support my teenage children when I have a diagnosis of ovarian cancer?
Are the experts aware of a link between cancer and depression, or mental health issues?
Does it become easier to deal with the fear and anxiety about ovarian cancer coming back or getting worse? I find it’s my first thought every morning.
‘I’ve read that people that have certain cancers, including ovarian, shouldn’t eat flax seeds, as they have an oestrogen effect on the body.Is this true?’
I had a full hysterectomy, but because the cancers are hormone driven (related to endometriosis) I can’t take HRT. I haven't received any support or advice from my hospital regarding the menopause. I’ve just been left to get on with it. What help is out there if HRT isn’t an option?
Both my mother and grandmother died from ovarian cancer - my mother was in her early 40s. I am now 36 and I I believe I am in an 'at risk' category. My aunt, who is now in her 50s, has regular screening for ovarian cancer following my mother's death, however as I was only 25 I was not offered this.
Following from my mother's death I visited the family cancer clinic and as there was not...
I’m 34 years old, BRCA1+ and have been sterilised. What is the latest information regarding the best age for prophylactic oopherectomy? Could you also advise the best route I need to follow as my GP isn't very forthcoming.
My sister has just been diagnosed with advanced breast cancer, and she has also been tested positive for the BRCA1 gene mutation. Our father was recently diagnosed with prostate cancer. How do I access genetic counselling and testing?
I am concerned about the possibility of my daughters getting ovarian cancer at some time in the future. I’ve heard that genetic testing should be offered to all women across the UK with high grade serous ovarian cancer.
I live in Swansea, Wales and I was diagnosed with stage 3-4 ovarian cancer in December 2013. I have four daughters aged between 21 to 39. I know of no other member of my...
I read recently that research has shown the use of HRT can increase the risk of ovarian cancer. Does this issue refer also to the use of vagifem, the HRT tablet which I take vaginally for a bladder problem? I am 66 years old and was a member of the UKTOCCS research.
I have been on HRT Evorel 100 and Utrogen 100 for two years - I am 57 yrs old. I now have intermittent bleeding - some fresh, some brown. Is this a symptom of ovarian cancer?
I have recently been diagnosed with ovarian cancer and am going to need a hysterectomy. What will happen when I have an early menopause?
More than two years after treatment, I still suffer from hot flushes and sweats. They come every 30 minutes, night and day. I have tried a number of medications and homeopathic remedies. I was on HRT for 14 years from age 50, but cannot go back on it now. I have been reading about soy/isoflavones. Is there a difference between taking a supplement and taking soy in the format of yogurt and milk...
What is the risk of my cancer recurring and why? I had the all the clear recently but I wonder if it will occur in another area and why.