Question asked by: 
Attendee of Ask the Experts event, Manchester
Date asked: 
Jun 2014

Is there any database in the UK for patients with any kind of cancers, and how well they’ve done on different treatments?

Is there any database in the UK for patients with any kind of cancers, and how well they’ve done on different treatments?
Yes, there are, I will answer it in two ways.
Response by Professor Richard Edmondson, Professor of Gynaecological Oncology

There are several databases now that are produced where you can access overall patient data so you can begin to see what percentage of patients did this or that. There is now talk and ideas being developed to try and have databases where individual patients can log their individual tumours, particularly when they’re extremely rare. That’s something that we’d like to see so that we can build up a database of the very rare tumours, so that we can start to learn about those a little bit, so that’s a project that is definitely under development and it’s taking some time to do.

There are quite difficult issues about consent for that, but that is something that’s happening, but now there are some websites through National Cancer Intelligence Network and others that you can use.