As Target Ovarian Cancer’s Head of Research, I strongly believe that the research community needs to embrace the insight women with ovarian cancer, their friends and relatives can bring to all aspects of the research process, the buzz words being ‘Patient Public Involvement (PPI)’. To ensure Target Ovarian Cancer is at the forefront of such work we recently brought together an amazing group of individuals for a day’s training and discussion about medical research and how they can meaningfully contribute as Target Ovarian Cancer’s first ever Research Advocates.
Our volunteers were joined by Professor Sam H Ahmedzai, Head of the Academic Unit of Supportive Care at Sheffield University, a member of Target Ovarian Cancer’s Scientific Advisory Board and a pioneer of PPI, and David Ardron, Chair of the North Trent Consumer Research Panel, previously Chair of the National Cancer Research Institute consumer liaison group and a guru on PPI.
Our key objective for the day was to ensure the ‘I’ in PPI really means real Involvement, and not just a tick box consultation with the lay audience. When you consider that there have been no new treatments for ovarian cancer for at least 20 years, you’ll understand how important research is in this field.
Another plus on an inspiring day was the lovely lunch and cakes provided by our venue, Baden Powell House in South Kensington, the home of the international Scout movement to which I once belonged. For more information about our team of Research Advocates please click here.