Facebook Facebook Share

Rona-story

Rona's story

"I would absolutely recommend women to take part in trials if they feel it is right for them. Certainly I was very keen to take part in it because I want to try and increase the different drugs that are available for use with ovarian cancer."

There is an urgent need for new treatments to improve survival. Without clinical trials, medical research cannot progress. Find out how we’re campaigning for better access to clinical trials.

Currently, fewer than 500 women with ovarian cancer annually enter a clinical trial aimed at finding new treatments 1. This is only seven per cent of the 7,000 women diagnosed each year, despite the Government's Life Sciences Strategy, which aims to "place clinical research at the heart of the NHS, and empower patients to participate in research" 2.

In addition, there is unequal access to clinical trials, dependent on an individual's postcode, and only 30 per cent of women are informed about clinical trials by their clinician 3.

Yet research has shown that participation in a clinical trial improves long-term survival, whether part of the control arm or the active research 4, and that those hospitals which undertake medical research provide better treatment 5.What needs to change?

What needs to change?

  • All women diagnosed with ovarian cancer must be informed about clinical trials.
  • No presumptions must be made based on age, health or distance from a trial to not inform women about clinical trials; it is their choice.
  • Women must feel empowered to ask their clinician or health professional about available clinical trials.
  • Regional variation must end: All women, irrespective of their location, have an equal right to access trials across the whole of the UK.
  • Quicker clinical trials must be set up to allow for more trials, more centres, more choice and more women in trials.
  • More resources must be provided to support the clinical community to ensure there are more trials so more potential treatments can be tested.

Our campaign so far

Watch this video from our ambassador Rona Passmore, about her experience on a clinical trial:

Help us campaign

  • Ask your clinician to tell you about clinical trials you may be eligible for. 
  • Use our Clinical Trials Information Centre to find trials either by location or keyword. Results can easily be emailed or printed out for your medical appointments
  • Contact us if you are unsure or not satisfied with the information or answers you have received
  • Ensure your health professionals have bookmarked our Clinical Trials Information Centre so next time they can provide help more quickly.
  • Share your story with us - it is the stories from people who have experienced ovarian cancer first-hand that influence change, and that inspire women or family members in similar circumstances.

Stay up to date

Visit the Clinical Trials Information Centre

References
  1. National Institute for Health Research Cancer Research Network (NCRN) 2011-12 and 2012-13 data
  2. Department for Business Innovation and Skills, Strategy for UK Life Sciences
  3. Target Ovarian Cancer Pathfinder Study 2012. Ipsos Mori. 15 Jan 2014, page 57. 
  4. Pattern of care and impact of participation in clinical studies on the outcome in ovarian cancer. Du Bois, A.; Rochon, J; Lamparter, ; Pfisterer, J. International Journal of Gynaecological Cancer 2005 (vol 15) pp. 183-191(9)
  5. Engagement in research: an innovative three-stage review of the benefits for health-care performance. Hanney, S; Boaz, A; Jones, T; Soper B. Health Services and Delivery Research 2013 (Vol1) Issue: 8

Read related news

News
A pharmacist at work
Friday 2 June 2017
Today, clinicians announce promising results from an early-stage clinical trial, which tested out a potential new ovarian cancer drug. A team from the Institute of Cancer Research and Royal Marsden NHS Foundation Trust will present the results at the American Society of Clinical Oncology (ASCO)...
News
Donate
Wednesday 31 May 2017
We are delighted to be relaunching our Target Ovarian Cancer Clinical Trials Information Centre today, an essential tool in helping more women access trials. Target Ovarian Cancer’s award-winning Clinical Trials Information Centre was first launched in response to a very clear gap, as evidenced in...
News
Yiyan in the lab
Saturday 20 May 2017
Today is International Clinical Trials Day, a day to thank and recognise researchers and to encourage even more people to take part in clinical trials. Clinical trials offer women who have a diagnosis of ovarian cancer the opportunity to access new cancer drugs, improve understanding of the disease...
Blog
The group in Surrey
Saturday 6 May 2017
Lindsey is an oncology dietitian working with Dr Agnieszka Michael on the EDMONd study which is investigating the use of Elemental Diet for women with an inoperable bowel obstruction. As a Macmillan oncology dietitian, one of the hardest aspects of my job is looking after women with ovarian cancer...

Pages